Attn: Practitioners of the ER

‘Trish goes to the Emergency Department (ER)’

(Campaign initiated December 15th, 2018)

We invite all physicians and practitioners of Emergency Departments everywhere to join our campaign. It’s time to spread awareness and educate first contact medical providers about lesser known aspects of endometriosis. Our goal is to improve identification, treatment and referral of women with endometriosis of the respiratory system earlier in the disease process. The first steps are discussed in this short video:

‘Thank You’ to the practitioners of the Emergency Departments. Please join us. Participation in our survey and attendance to our future webinar (free) has potential to change the lives of women around the world. Let’s start the change, now.

Extrapelvic Not Rare, Inc.

Do you know endometriosis is a body-wide disease?

Do you, or someone you know, have endometriosis in locations outside of the reproductive tissues?

Can you recognize presentations of endometriosis in various locations of the body?

Endometriosis has been traditionally labelled a disease of the female reproductive system. However, endometriosis can involve many other areas of a woman’s body. It has also been identified among men, women without a uterus and female fetuses. One of the purposes of Extrapelvic Not Rare, Inc., is to assist in redefining endometriosis as a body-wide, inflammatory condition in which lesions similar, but not identical to uterus tissue is located in areas outside of the uterus and is NOT confined to female reproductive organs and tissues.

Endometriosis is a disease which remains under recognized, under funded and under investigated. As a result there are many myths, stigmas, misinformation and ‘taboos’ associated with the disease. We join many other like-minded advocates and organizations to remove these barriers as they pertain to awareness, education, diagnosis and treatment for endometriosis. Our focus is specific on the area of disease that occurs outside the reproductive system and the necessity to integrate ALL disease, body-wide, into all conversation about endometriosis.