Welcome to

extrapelvic not Rare

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Upcoming Events:

May 25th, 2021  4pm PST (7pm EST)

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Tuesday, May 25th at 4:00 PM, PST with Founder and Executive Director of @extrapelvicnotrare, Wendy Bingham, DPT! ⁠
What you’ll learn 👇🏼
1. What exactly are ‘pelvic’ and ‘extrapelvic endometriosis’?⁠
2. Explain Thoracic Endometriosis Syndrome (current and proposed)⁠
3. Overview of Thoracic Endometriosis Presentations (signs, symptoms, differential diagnoses, and unique characteristics)⁠
4. Diagnosis and Treatment Options⁠
Free Event. Pre-registration:

 
 

 

in honor of

march 2021 endometriosis awareness month

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Endometriosis: It’s not just a disease of the female reproductive system?

(Guest blog ‘wonder woman wednesday’ @ happypharmlife)

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PODCAST PART 1 GUEST INTERVIEW WITH HOSTS AMY AND BRITTANY OF ‘IN 16 YEARS OF ENDO’

(Link to audio interview @ in16yrs.com Episode 59)

Podcast Part 2 Guest Interview with Amy and Brittany of “in 16 Years of Endometriosis’

(Link to audio interview @ in16yrs.com episode 60)

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extrapelvic not rare

Video Series

Introduction and Lesson 1: What is Extrapelvic Endometriosis?

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Lesson 2: Is Extrapelvic Endometriosis Rare?

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Lesson 3: Where in the body has endometriosis been found?

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   Lesson 4: Diaphragm Endometriosis

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Self-Advocacy Tool Kit (download)

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Trish’s latest blog:

Blog #8 Thoracic Endometriosis and Video-Assisted Thoracoscopy (VATS)  

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Between January 1st, 2019 and March 15th, 2021 residents of 170 countries and autonomous territories on every continent have visited!!!

2020 Countries Map

“I alone cannot change the world, but I can cast a stone across the waters create many ripples”

–  Mother Teresa

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Did you know endometriosis is a body wide disease?

   Do you, or someone you know, have endometriosis in locations outside of the reproductive tissues?

Can you recognize presentations of endometriosis in various locations of the body?

Endometriosis has been traditionally labelled a disease of the female reproductive system, with active disease limited to the child-bearing years associated with menstruation.  The disease is far more extensive within the body; across age, fertility and biological sex.

Endometriosis can involve many other areas of a person’s body. It has been identified among female fetuses, cis-men, transgender males, and persons (afab) born without a uterus.  Active disease has also been identified in people (afab) from early adolescence, after post-surgical hysterectomy, with/without oophorectomy, and beyond natural menopause.  One purpose of Extrapelvic Not Rare is to assist redefining endometriosis as a disease with body-wide lesion potential, capacity for systemic inflammation and disrupt function of other body systems.

Endometriosis is a disease which remains under recognized, under funded and under investigated. As a result there are many myths, stigmas, misinformation and ‘taboos’ associated with the disease. We join many other like-minded advocates and organizations to remove these barriers as they pertain to awareness, education, diagnosis and treatment for endometriosis.  Our Mission is specific on the area of disease that occurs outside the reproductive system and the necessity to integrate ALL disease, body-wide, into all conversation about endometriosis.

If you would like to make a contribution to aide our projects (refer to objectives listed on the Mission page).  You may contribute increments of $10 (1=$10   2=$20   3=$30 etc).  Please save your PayPal receipt for tax purposes.

Donation

As a charitable organization with 501 (c)3 status, all monetary contributions to Extrapelvic Not Rare are tax-deductible. All monetary gifts will be allocated to support the organization’s objectives listed within the mission statement and general operation.

$10.00

 

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All Rights Reserved © 2019 Wendy Bingham, DPT  Extrapelvic Not Rare 

(last update 03/06/2021)