More than a Bad Period

Endometriosis is traditionally known as a disease of the a.) reproductive system in people assigned female at birth (afab), b.) limited to people who menstruate during the c.) child-bearing years. In reality, the endometriosis lesions are identified in all (11) major body systems. It also occur among a.) persons prior to their first menses (premenarche), b.) continue (or begin) after last menses (menopause), c.) persons afab born without a uterus d.) transgender males and among e.) rare cis-males. Lesions have been identified in fetuses assigned female. While it is common for conditions of the uterus to occur concurrent with endometriosis among persons afab, it is a separate, independent condition that does not require the presence of a uterus to begin, continue or will resolve with removal of the uterus (hysterectomy).

One purpose of Extrapelvic Not Rare (501 c3) is to prompt redefinition of endometriosis as a disease with body-wide lesion potential and capacity to disrupt systemic homeostasis. Myths continue to perpetuate that disease outside of the reproductive organs, support structures and local area is ‘rare’, the reality is, extrapelvic endometriosis is not rare; its un-, mis- and delayed in diagnosis.

Members of the Endometriosis Community participate in the 2020-2021 Awareness Month Campaign for Extrapelvic Endometriosis

How can You help Us, help our community?

1.) Donate to our organization

Extrapelvic Not Rare

As a registered 501 (c)3 status, contributions to Extrapelvic Not Rare are tax-deductible. All monetary gifts will be allocated to support our mission.


2.) Shop online at – with ‘Extrapelvic Not Rare’ as your charity.

3.) Join our social media community:

“I alone cannot change the world, but I can cast a stone across the waters to create many ripples”

– Mother Teresa


All Rights Reserved © 2019 Wendy Bingham, DPT  Extrapelvic Not Rare 

(Last update 01/08/2022)