Welcome to
extrapelvic not Rare
________________________________________________
Activities of extrapelvic not rare in honor of
march 2021 endometriosis awareness month
(Select ‘Full Screen’ bottom right corner for best image)
___________________________________________________
Endometriosis: It’s not just a disease of the female reproductive system?
(Guest blog ‘wonder woman wednesday’ @ happypharmlife)
__________________________________________________
PODCAST PART 1 GUEST INTERVIEW WITH HOSTS AMY AND BRITTANY OF ‘IN 16 YEARS OF ENDO’
(Link to audio interview @ in16yrs.com Episode 59)
Podcast Part 2 Guest Interview with Amy and Brittany of “in 16 Years of Endometriosis’
(Link to audio interview @ in16yrs.com episode 60)
_______________________
extrapelvic not rare
Video Series
Introduction and Lesson 1: What is Extrapelvic Endometriosis?
(Select ‘Full Screen’ bottom right corner for best image)
Lesson 2: Is Extrapelvic Endometriosis Rare?
(Select ‘Full Screen’ bottom right corner for best image)
Lesson 3: Where in the body has endometriosis been found?
(Select ‘Full Screen’ bottom right corner for best image)
Lesson 4: Diaphragm Endometriosis
(Select ‘Full Screen’ bottom right corner for best image)
Self-Advocacy Tool Kit (download)
_________________________________
Trish’s latest blog:
Blog #8 Thoracic Endometriosis and Video-Assisted Thoracoscopy (VATS)
_________________________________
Between January 1st, 2019 and March 15th, 2021 residents of 170 countries and autonomous territories on every continent have visited!!!
“I alone cannot change the world, but I can cast a stone across the waters create many ripples”
– Mother Teresa
___________________________________
Did you know endometriosis is a body wide disease?
Do you, or someone you know, have endometriosis in locations outside of the reproductive tissues?
Can you recognize presentations of endometriosis in various locations of the body?
Endometriosis has been traditionally labelled a disease of the female reproductive system, with active disease limited to the child-bearing years associated with menstruation. The disease is far more extensive within the body; across age, fertility and biological sex.
Endometriosis can involve many other areas of a person’s body. It has been identified among female fetuses, cis-men, transgender males, and persons (afab) born without a uterus. Active disease has also been identified in people (afab) from early adolescence, after post-surgical hysterectomy, with/without oophorectomy, and beyond natural menopause. One purpose of Extrapelvic Not Rare is to assist redefining endometriosis as a disease with body-wide lesion potential, capacity for systemic inflammation and disrupt function of other body systems.
Endometriosis is a disease which remains under recognized, under funded and under investigated. As a result there are many myths, stigmas, misinformation and ‘taboos’ associated with the disease. We join many other like-minded advocates and organizations to remove these barriers as they pertain to awareness, education, diagnosis and treatment for endometriosis. Our Mission is specific on the area of disease that occurs outside the reproductive system and the necessity to integrate ALL disease, body-wide, into all conversation about endometriosis.
If you would like to make a contribution to aide our projects (refer to objectives listed on the Mission page). You may contribute increments of $10 (1=$10 2=$20 3=$30 etc). Please save your PayPal receipt for tax purposes.
Donation
As a charitable organization with 501 (c)3 status, all monetary contributions to Extrapelvic Not Rare are tax-deductible. All monetary gifts will be allocated to support the organization’s objectives listed within the mission statement and general operation.
$10.00
YouTube: Extrapelvic Not Rare Channel
Instagram / IGTV: ExtraNotRare
All Rights Reserved © 2019 Wendy Bingham, DPT Extrapelvic Not Rare
(last update 03/06/2021)
