Fresh on the heels of Endometriosis Awareness Month (March), we have launched a new animated video series to further awareness and education about Extrapelvic Endometriosis.

Introduction and Lesson 1: What is Extrapelvic Endometriosis?

Lesson 2: Is Extrapelvic Endometriosis Rare?

Lesson 3: Where in the body has endometriosis been found?

Diaphragm Endometriosis

Self Advocacy Took Kit

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Trish’s latest blog:

Blog #7 Should we compare endo to cancer?

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Announcement: We began building our website just over one year ago. Between January 1st, 2019 and June 1st, 2020 residents of 136 countries on every continent have visited!!!

“I alone cannot change the world, but I can cast a stone across the waters to create many ripples”

– Mother Teresa

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8 Question Survey for Visitors

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Attn: Practitioners of the ER

‘Trish goes to the Emergency Department (ER)’

We invite all physicians and practitioners of Emergency Departments everywhere to join our campaign. It’s time to spread awareness and educate first contact medical providers about lesser known aspects of endometriosis. Our goal is to improve identification, treatment and referral of women with endometriosis of the respiratory system earlier in the disease process. The first steps are discussed in this short video:

‘Thank You’ to the practitioners of the Emergency Departments. Please join us. Participation in our survey and attendance to our future webinar (free) has potential to change the lives of women around the world. Let’s start the change, now.

Welcome to

Extrapelvic Not Rare, Inc.

Did you know endometriosis is a body-wide disease?

Do you, or someone you know, have endometriosis in locations outside of the reproductive tissues?

Can you recognize presentations of endometriosis in various locations of the body?

Endometriosis has been traditionally labelled a disease of the female reproductive system, with active disease limited to the child-bearing years associated with menstruation. The disease is far more extensive within the body and across age, fertility and biological sex.

Endometriosis can involve many other areas of a woman’s body. It has also been identified among cis-men, transgender males, women born without a uterus, persistant disease after hysterectomy with/without oophorectomy, post-surgical or natural menopause and female fetuses. One of the purposes of Extrapelvic Not Rare is to assist in redefining endometriosis as a body-wide, inflammatory condition in which lesions similar, but not identical to uterus tissue, is located in areas outside of the uterus and is NOT confined to female reproductive organs and tissues.

Endometriosis is a disease which remains under recognized, under funded and under investigated. As a result there are many myths, stigmas, misinformation and ‘taboos’ associated with the disease. We join many other like-minded advocates and organizations to remove these barriers as they pertain to awareness, education, diagnosis and treatment for endometriosis. Our Mission is specific on the area of disease that occurs outside the reproductive system and the necessity to integrate ALL disease, body-wide, into all conversation about endometriosis.

If you would like to make a contribution to aide our projects (refer to objectives listed on the Mission page). You may contribute increments of $10 (1=$10 2=$20 3=$30 etc). Please save your PayPal receipt for tax purposes.

Donation

As a charitable organization with 501 (c)3 status, all monetary contributions to Extrapelvic Not Rare are tax-deductible. All monetary gifts will be allocated to support the organization’s objectives listed within the mission statement and general operation.

$10.00

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(last update 06/01/2020)