Fundraiser to support EPNR

We are excited to announce a member of the endometriosis community, Lia Borio, PTA, has created a 2023 monthly wall calendar with proceeds to benefit our non-profit. For many with chronic, inflammatory driven conditions, implementation of a low-inflammation, with/without additional restrictions (ie. vegetarian or vegan; non-gmo, natural or organic) a reduction in overall inflammation within the body can play a role in symptom management. It is important to note that the amount of benefit from diet alterations is individual.
The ‘Endovidual Eats 2023 Gluten Free/Dairy Free Calendar evolved following her growing interest in developing recipes, which in-turn improved her feeling of wellness. In parallel, she began sharing her recipes through photos and videos on social media.

To learn more of Lia Borio, PTA’s story through interview with The Healthy Journal:
https://thehealthyjournal.com/ https://www.youtube.com/watch?v=nFgQS4TiuL

To order a 2023 GF/DF Monthly Wall Calendar (and support EPNR): https://endovidualeats.com/

(The video below is also available with subscripts, through the link provided here. Copy link and paste into new window. https://www.youtube.com/watch?v=VDeJt7NYOhI)

Excerpt from:”Pursuit of a Diagnosis: Bowel Problems & Endometriosis”

THE ENDOMETRIOSIS SUMMIT, FEBRUARY, 2022, CELEBRATION, INDIA. DR. ABHISHEK MANGESHIKAR, MD (INDIAN CENTRE FOR ENDOMETRIOSIS, MUMBAI, INDIA) AND DR. WENDY BINGHAM, DPT

It’s a sad reality, challenging experiences are commonplace for those seeking diagnosis and treatment for this endometriosis. These encounters can have profound, lasting impacts on our lives.
Note: content of this video was filmed with light humour. It is NOT intended to trivialize individuals with endometriosis, their encounters with healthcare professionals or the disease itself. “Laughter is a weapon. It carries light. To laugh is to defy the darkness” – Isabella Connelly.
Warning: contains content that may trigger memories of previous medical encounters in pursuit of a diagnosis and/or treatment for endometriosis.

More than a Bad Period

Endometriosis is traditionally known as a disease of the a.) reproductive system in people assigned female at birth (afab), b.) limited to people who menstruate during the c.) child-bearing years. In reality, the endometriosis lesions are identified in all (11) major body systems. It also occur among a.) persons prior to their first menses (premenarche), b.) continue (or begin) after last menses (menopause), c.) persons afab born without a uterus d.) transgender males and among e.) rare cis-males. Lesions have been identified in fetuses assigned female. While it is common for conditions of the uterus to occur concurrent with endometriosis among persons afab, it is a separate, independent condition that does not require the presence of a uterus to begin, continue or will resolve with removal of the uterus (hysterectomy).

One purpose of Extrapelvic Not Rare (501 c3) is to prompt redefinition of endometriosis as a disease with body-wide lesion potential and capacity to disrupt systemic homeostasis. Myths continue to perpetuate that disease outside of the reproductive organs, support structures and local area is ‘rare’, the reality is, extrapelvic endometriosis is not rare; its un-, mis- and delayed in diagnosis.

Members of the Endometriosis Community participate in the 2020-2021 Awareness Month Campaign for Extrapelvic Endometriosis

How can You help Us, help our community?

1.) Donate to our organization

Extrapelvic Not Rare

As a registered 501 (c)3 status, contributions to Extrapelvic Not Rare are tax-deductible. All monetary gifts will be allocated to support our mission.

$10.00