Creation of the internet has brought educational opportunities to the tips of our fingers.  A 24/7 access to information, interpersonal interactions with support groups, peers and those with similar interests.  Along with convenience, and accurate resources that are current and without bias are often difficult to decipher from resources that are inaccurate, outdated or biased.

Unlike many other health concerns, the reputation of many large institutes, commended for their work in fields of cancer, heart disease, organ transplantation etc, no such institutes can be commended for endometriosis care.  In fact, most large institutes and general health organizations with websites that present topics across the healthcare spectrum, are vastly outdated and inaccurate in their description and treatment recommendations for endometriosis.

Hence, a few, accurate, regularly updated websites are listed below.  These organizations, companies and individuals have consistently demonstrated commitment to provide up-to-date information with credible resources without sponsorship, endorsement or any type of subsidies from the pharmaceutical industries.

Media Articles

  1. “Endometriosis Awareness Month: Heather C. Guidone” Empowered Magazine UK, Issue #3, February 3rd, 2022.

Facebook Closed Groups

Website FB Page Group Logo
Extrapelvic Not Rare: Endometriosis Support and Education Group: A self-study education group containing an overview of modern concepts and practitioners whom adhere to this approach, topics relevant to endometriosis, reproductive organs, tissue disease, and extrapelvic disease.

Internet Websites


Books and Literature:

1.)  The ABC’s of EPE:  Extrapelvic Endometriosis. Softback picture book with A to Z locations of endometriosis identified outside of the female reproductive organs and tissues (Pelvic Endometriosis).  Citations listed for all locations.  (10% proceeds to Extrapelvic Not Rare non-profit).

2.)  ‘Finding Peace with a Devastating Disease – Reflections on Endometriosis’.  (2021) by Amy Corfeli.

3.)  FemTruth Endometriosis Edition: A Collection of Stories of Courageous Women. (2019) Edited by Silvia Young.

4.)  Beating Endo: how to reclaim your life from endometriosis. Iris K Orbuch, MD and Amy Stein, DPT. Available at Walmart, Target and Amazon.

5.) Living with Lung and Colon Endometriosis: Catamenial Pneumothorax. Military Medicine at its best. (2005) by Glynis D. Wallace, D.M.D

6.)  Beating Endo: A Patient’s Treatment Plan for Endometriosis. (2019)                                                                  Dr. Iris Kerin Orbuch, Dr. Amy Stein. (2019)

7.) Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick.  by  Maya Dusenbery. (2018)  

8.)  Please Read This Leaflet Carefully. by Karen Havelin

Originally published: December 15th, 2018

Last updated: January 4th, 2023