Resources

Creation of the internet has brought educational opportunities to the tips of our fingers.  A 24/7 access to information, interpersonal interactions with support groups, peers and those with similar interests.  Along with convenience, and accurate resources that are current and without bias are often difficult to decipher from resources that are inaccurate, outdated or biased.

Unlike many other health concerns, the reputation of many large institutes, commended for their work in fields of cancer, heart disease, organ transplantation etc., no such institutes can be commended for endometriosis care.  In fact, most large institutes and general health organizations with websites that present topics across the healthcare spectrum, are vastly outdated and inaccurate in their description and treatment recommendations for endometriosis.

Hence, a few, accurate, regularly updated websites are listed below.  These organizations, companies and individuals have consistently demonstrated commitment to provide up-to-date information with credible resources without sponsorship, endorsement or any type of subsidies from the pharmaceutical industries.

  • Endometriosis: One Step At A Time A free self-paced online course comprised of 112 lessons that address the many dimensions of living with endometriosis, physically and emotionally. The course covers an array of topics from understanding the crucial basics to symptom tracking and management, surgical treatment, informed consent,  infertility, and the importance of a multidisciplinary approach to your care. Download questions to ask your doctor and checklists for pre and post surgery to help support your recovery process. Learn from top healthcare providers, excision surgeons, and advocates, and how to identify misinformation so you can be empowered to make the best decisions for YOU. 
  • Nancy’s Nook Website supporting you to understand the disease, advocate for your health, and get the best possible treatment.
  • Endometriosis Research Center (ERC) National Non-profit (501 c3) Organization, USA. Focus on Education, Research and Support of those with Endometriosis.
  • Endopaedia.info is a website created by David Redwine, MD.
  • Laparoscopic Appearance of Endometriosis, Color Atlas 1990 and Subtle Appearance of Endometriosis, 1991 (Martin D, Redwine D, Reich H)
  • Possover International Medical Center.  Treatment of Conditions of the Pelvis and Endometriosis.  Patient Education Blog and Doctor Education Blog.

Bleed Destroying Myths and Misogyny in Endometriosis Care (2023) by Tracey Lindeman



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Finding Peace with a Devastating Disease – Reflections on Endometriosis (2021) by Amy Corfeli


Beating Endo Book

Beating Endo: how to reclaim your life from endometriosis (2021) by Iris K Orbuch, MD and Amy Stein, DPT. (also available @ Walmart and Target)


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Living with Lung and Colon Endometriosis: Catamenial Pneumothorax (2005) by Glynis D. Wallace, D.M.D


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Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick (2018) by Maya Dusenbery


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Please Read This Leaflet Carefully (2019) by Karen Havelin


Living with Endometriosis The Complete Guide to Risk Factors, Symptoms, and Treatment Options (2018) by Samantha Bowick