Creation of the internet has brought educational opportunities to the tips of our fingers. A 24/7 access to information, interpersonal interactions with support groups, peers and those with similar interests. Along with convenience, and accurate resources that are current and without bias are often difficult to decipher from resources that are inaccurate, outdated or biased.
Unlike many other health concerns, the reputation of many large institutes, commended for their work in fields of cancer, heart disease, organ transplantation etc, no such institutes can be commended for endometriosis care. In fact, most large institutes and general health organizations with websites that present topics across the healthcare spectrum, are vastly outdated and inaccurate in their description and treatment recommendations for endometriosis.
Hence, a few, accurate, regularly updated websites are listed below. These organizations, companies and individuals have consistently demonstrated commitment to provide up-to-date information with credible resources without sponsorship, endorsement or any type of subsidies from the pharmaceutical industries.
Facebook Closed Groups
Self-Study Education Group Overview of Modern Concepts and Practitioners whom adhere to this approach, topics relevant to endometriosis and reproductive organs/tissue disease > extrapelvic disease: Nancy’s Nook Endometriosis Education
Support and Education Groups (Primary Focus on Disease outside of reproduction):
- Endometriosis Research Center (ERC). National Non-profit (501 c3) Organization, USA. Focus on Education, Research and Support of those with Endometriosis.
- Center for Endometriosis Care. Private Practice Multidisciplinary Endometriosis Excision Surgery Care Center.
- David Redwine, MD is a retired excision surgeon of endometriosis. He maintains an independent website discusses physiological aspects of disease affecting the reproductive and extra-pelvic areas.
- Dan Martin, MD is a retired excision surgeon of endometriosis. He maintains a website with links to multiple publications, to include a comprehensive atlas of the myriad appearances of endometriosis.
Marc Possover, MD : Possover International Medical Center. Neuropelveology – Treatment of Conditions of the Pelvis and Endometriosis.
Patient Blogs: Patient Education Blog
Doctor Blogs: Doctor Education Blog
Books and Literature:
1.) The ABC’s of EPE: Extrapelvic Endometriosis. Softback picture book with A to Z locations of endometriosis identified outside of the female reproductive organs and tissues (Pelvic Endometriosis). Citations listed for all locations. (10% proceeds to Extrapelvic Not Rare non-profit).
2.) FemTruth Endometriosis Edition: A Collection of Stories of Courageous Women. (2019) (Book one of anticipated four book series). Paperback and Kindle Version included per order.
3.) Living with Lung and Colon Endometriosis: Catamenial Pneumothorax. Military Medicine at its best. (2005) Glynis D. Wallace, D.M.D
4.) Beating Endo: A Patient’s Treatment Plan for Endometriosis. Dr. Iris Kerin Orbuch, Dr. Amy Stein. (2019)
5.) Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick. Maya Dusenbery. (2018)
6.) Please Read This Leaflet Carefully. Karen Havelin
All Rights Reserved © 2018 Wendy Bingham, DPT Extrapelvic Not Rare
(last update 05/10/2020)