Creation of the internet has brought educational opportunities to the tips of our fingers.  A 24/7 access to information, interpersonal interactions with support groups, peers and those with similar interests.  Along with convenience, and accurate resources that are current and without bias are often difficult to decipher from resources that are inaccurate, outdated or biased.

Unlike many other health concerns, the reputation of many large institutes, commended for their work in fields of cancer, heart disease, organ transplantation etc, no such institutes can be commended for endometriosis care.  In fact, most large institutes and general health organizations with websites that present topics across the healthcare spectrum, are vastly outdated and inaccurate in their description and treatment recommendations for endometriosis.

Hence, a few, accurate, regularly updated websites are listed below.  These organizations, companies and individuals have consistently demonstrated commitment to provide up-to-date information with credible resources without sponsorship, endorsement or any type of subsidies from the pharmaceutical industries.

Media Articles

  1. “Endometriosis Awareness Month: Heather C. Guidone” Empowered Magazine UK, Issue #3, February 3rd, 2022.

Facebook Closed Groups

Self-Study Education Group Overview of Modern Concepts and Practitioners whom adhere to this approach, topics relevant to endometriosis and reproductive organs/tissue disease > extrapelvic disease:           Extrapelvic Not Rare: Endometriosis Support and Education Group

Website FB Page Group Logo

Nancy’s Nook Endometriosis Education Facebook Group   and  Nancy’s Nook Website



Internet Websites

  • Endometriosis Research Center (ERC).  National Non-profit (501 c3) Organization, USA. Focus on Education, Research and Support of those with Endometriosis.
  • Center for Endometriosis Care. Private Practice Multidisciplinary Endometriosis Excision Surgery Care Center.

  • David Redwine, MD is a retired excision surgeon of endometriosis.  He maintains an independent website discusses physiological aspects of disease affecting the reproductive and extra-pelvic areas.  

  • Dan Martin, MD is a retired excision surgeon of endometriosis.  He maintains a website with links to multiple publications, to include a comprehensive atlas of the myriad appearances of endometriosis.


 Marc Possover, MD : Possover International Medical Center.  Neuropelveology – Treatment of Conditions of the Pelvis and Endometriosis.

Patient Blogs: Patient Education Blog

Doctor Blogs:  Doctor Education Blog





Gabriel Mitroi:    Bucharest Endometriosis Center.

 Endometriosis Handbook: Endometriosis from From A to Z

Books and Literature:

1.)  The ABC’s of EPE:  Extrapelvic Endometriosis. Softback picture book with A to Z locations of endometriosis identified outside of the female reproductive organs and tissues (Pelvic Endometriosis).  Citations listed for all locations.  (10% proceeds to Extrapelvic Not Rare non-profit).

The ABC’s of EPE: Extrapelvic Endometriosis Softback 7 x 7 The ABCs of EPE Extrapelvic Endometriosis

2.)  ‘Finding Peace with a Devastating Disease – Reflections on Endometriosis’.  (2021)                                          by Amy Corfeli.

‘Finding Peace’ in Paperback or e-book (order here)


3.)  FemTruth Endometriosis Edition: A Collection of Stories of Courageous Women. (2019)                                Edited by Silvia Young.

Paperback/Kindle: FemTruths Endometriosis Edition (Order Here)


4.)  Beating Endo: how to reclaim your life from endometriosis. Iris K Orbuch, MD and Amy Stein, DPT Available at Walmart, Target and Amazon.

Beating Endo: how to reclaim your life from endometriosis

Beating Endo Book

5.) Living with Lung and Colon Endometriosis: Catamenial Pneumothorax. Military Medicine at its                  best. (2005) by Glynis D. Wallace, D.M.D

Paperback/Kindle: Living with Lung and Colon Endometriosis (Order Here)


6.)  Beating Endo: A Patient’s Treatment Plan for Endometriosis. (2019)                                                                  Dr. Iris Kerin Orbuch, Dr. Amy Stein. (2019)

Hardback: Beating Endo (Order Here)     Paperback: Beating Endo (Order Here)


7.) Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed,                           Misdiagnosed, and Sick.  by  Maya Dusenbery. (2018)  

HardbackPaperback/AudioBook/Kindle/AudioCD:  Doing Harm  (Order Here)


8.)  Please Read This Leaflet Carefully.  by Karen Havelin

Paperback/Kindle: Please Read This Leaflet Carefully (Order Here)


All Rights Reserved  © 2018 Wendy Bingham, DPT  Extrapelvic Not Rare

(last update 06/06/2021)