Extrapelvic Not Rare is a 501 (c)3 tax-exempt charitable organization. We do not receive sponsorship or financial incentives from organizations or corporations that may benefit from provision of services, equipment or pharmaceutical agents in the care of those with endometriosis.
The mission of Extrapelvic Not Rare is to:
1.) Stimulate conversation across the healthcare spectrum, those impacted by the disease and the general public.
The realization, endometriosis is a common disease, yet most people are either unaware of, or misinformed about it’s pathogenesis, treatment options, body-wide potential for lesions and systemic ills endometriosis lesions contribute to.
2.) Facilitate interest, accrue and disperse funds to explore alternate theories of origin, pathogenesis and patient experiences with extrapelvic endometriosis. Preference toward independent researchers is given.
3.) Develop and design literature with up-to-date information about extrapelvic disease to include: signs and symptoms, diagnostics and appropriate treatment referrals. Literature across all platforms will be directed toward the healthcare sector and general public.
4.) Establish a library of information for healthcare providers and the public; focal topics of specific extrapelvic locations to include: facts, statistics and treatment. This includes the provision of resources and website sources of information with accurate, up-to-date literature and websites (private and public organizations). Additional focal topics about endometriosis and its influence on systemic changes are included as appropriate.
5.) Advocate across multiple platforms to improve education content of medical curriculum and healthcare professional continuing education; media publications to the general public for inclusion and accurate information about extrapelvic disease; inclusion of extrapelvic disease among the ‘conversation of’ endometriosis among organizations responsible for policy, treatment, education of the public or healthcare professionals dedicated to Women’s Health.
Please consider a contribution to support our mission. Help us help you as we continue to advocate and educate to #changetheconversation about endometriosis as a disease with #bodywide Potential. Donations can be given in $10 increments. (1=$10 2=$20 3=$30 donation). Please save your receipt for tax purposes.
As a charitable organization with 501 (c)3 status, all monetary contributions to Extrapelvic Not Rare are tax-deductible. All monetary gifts will be allocated to support the organization’s objectives listed within the mission statement and general operation.
1.) Jubanyik K, Comite F. Extrapelvic Endometriosis. Obstet Gynecol Clin N Amer. 1997;24(2):411-439.
2.) Matalliotakis M et al. Extra-pelvic endometriosis: Retrospective analysis on 200 cases in two different countries. Euro J Obstet Gynecol Reprod Biol. 2017;217:34-37.
3.) World Endometriosis Society. http://endometriosis.org/endometriosis/ (accessed July 5, 2018)
(last update 05/28/2020)
All Rights Reserved © 2019 Wendy Bingham, DPT. Extrapelvic Not Rare