Extrapelvic Not Rare, founded in 2018 by Dr. Wendy Bingham, DPT, is a non-profit organization focused on grassroots fundraising, independent research and updated medical education for endometriosis located outside the female reproductive organs and pelvic tissue.

Dr. Wendy Bingham, DPT

Executive Director and Founder


Dr. Wendy Bingham, DPT, with more than 20 years in medicine, has experienced endometriosis for 33 years, 30 of which were gaslit by conventional medicine.

As a thoracic endometriosis (TE) patient herself, Dr. Bingham is also a leading researcher and founder of Extrapelvicnotrare.org.

Considered “the voice” of the TE community with a growing social media following, Dr. Bingham integrates science, medical research and personal experience into a blended language for an audience of both doctors and patients. Previous projects Drs.Notes with EndoStats.com; NCD Alliance ‘NCD’s and Me’ to identify endometriosis as a global disease necessitating local-to-global policy changes to reduce social and economic injustices (NCDStory ).  Dr. Bingham obtained a BS in General Science at Oregon State University, Master of Physical Therapy at University of Maryland Eastern Shore and Doctor of Physical Therapy at Temple University.

Dr. Bingham bridges the gap between evidence-based to practical application and the medical provider’s perception with the patient’s experience.

Twitter:  @xtranotrare

Instagram: @ExtrapelvicNotRare

Facebook:  Two ‘Extrapelvic Not Rare Endo Support & Education’ groups exist.  One with focus on the respiratory, nervous and cutaneous systems; the second group focuses on the digestive and urinary systems.  (These groups have evolved from the previously ‘TE: Endometriosis of the Diaphragm and Thoracic Cavity Support and Education Group’.)



All Rights Reserved © 2019 Wendy Bingham, DPT.  Extrapelvic Not Rare

(last updated 03/16/2020)