Extrapelvic Not Rare, founded in 2018 by Dr. Wendy Bingham, DPT, is a non-profit organization focused on grassroots fundraising, independent research and updated medical education for endometriosis located outside the female reproductive organs and pelvic tissue.

Dr. Wendy Bingham, DPT

Executive Director and Founder


Dr. Wendy Bingham, DPT, with more than 20 years in medicine, has experienced endometriosis for 33 years, 30 of which were gaslit by conventional medicine.

As a thoracic endometriosis (TE) patient herself, Dr. Bingham is also a leading researcher and founder of Extrapelvicnotrare.org.

Considered “the voice” of the TE community with a growing social media following, Dr. Bingham integrates science, medical research and personal experience into a blended language for an audience of both doctors and patients. Previous projects Drs.Notes with EndoStats.com; NCD Alliance ‘NCD’s and Me’ to identify endometriosis as a global disease necessitating local-to-global policy changes to reduce social and economic injustices (NCDStory ).  Dr. Bingham obtained a BS in General Science at Oregon State University, Master of Physical Therapy at University of Maryland Eastern Shore and Doctor of Physical Therapy at Temple University.

Dr. Bingham bridges the gap between evidence-based to practical application and the medical provider’s perception with the patient’s experience.

Twitter:  @xtranotrare

Instagram: @ExtrapelvicNotRare

Facebook:  Two ‘Extrapelvic Not Rare Endo Support & Education’ groups exist.  One with focus on the respiratory, nervous and cutaneous systems; the second group focuses on the digestive and urinary systems.  (These groups have evolved from the previously ‘TE: Endometriosis of the Diaphragm and Thoracic Cavity Support and Education Group’.)

Silvia Young

Communications Advisor 


Human Right’s Activist, best-selling author and extra-pelvic endo survivor, Silvia Young’s career has focused on grassroots mobilizing and strategic communications, with a progressive use of social media and publishing platforms.  Silvia is the founder of FemTruth™, a spokesperson for CA-NOW (California Chapter of the National Organization of Women), Advisor of Extrapelvic Not Rare, Inc. and Editorial Director for ‘We Are Trish’ Media (Division of Extrapelvic Not Rare, Inc.).   Ms. Young was recently acknowledged for her leadership through CA-NOW at the 2018 Annual Gender Equity Awards.  She is an active member of the Public Relations Society of America (PRSA). She previously received the PRSA’s highest honor, and their youngest recipient of, the PROTOS Award, for media relations and event marketing. Since her time in endometriosis advocacy Young has been nominated for 2017 and 2018 WEGO Awards for Patient Leader, and is the proud recipient of the 2017 Giving Sister Award from Florida-based EndoSisters United.

Silvia is a founding steering committee member to end the ‘tampon tax’ in California, and the California Coalition ‘I Believe Her’ College Campus Campaign.  Local affiliations include the Alliance for Girls: San Francisco and the East Bay Soroptomist ‘She’s All That’ Conference.  Past organizations include but not limited to, The American Cancer Society, The Orangewood Foundation, Orangewood Children’s Home, Junior League of San Francisco, Junior League of Denver, Samaritan Homeless Shelters, Families First Colorado, Kathy’s House.

Currently Young is enrolled with Stanford University for accreditation in women’s studies and human rights. After earning her BA from California State University in Journalism, with minors in both Political Science and Theatre Arts, Young advanced to the American Conservatory of Theatre, San Francisco before starting a career in public affairs and public relations.

To learn more go to http://www.SilviaYoung.com


© 2018 Wendy Bingham, DPT.  All Rights Reserved