Extrapelvic Not Rare, was created in 2018 by Dr. Wendy Bingham, DPT.  It is a non-profit organization focused on grassroots fundraising, independent research and advancement of awareness and education toward healthcare disciplines and the public about endometriosis as a disease with bodywide potential beyond the female reproductive organs and tissues.

Dr. Wendy Bingham, DPT

Executive Director and Founder


Dr. Wendy Bingham, DPT, with more than 20 years in medicine, has experienced endometriosis for 33 years, 30 of which were gaslit by conventional medicine.

As a thoracic endometriosis (TE) patient herself, Dr. Bingham is also a leading researcher and founder of Extrapelvicnotrare.org.

Considered “the voice” of the TE community with a growing social media following, Dr. Bingham integrates science, medical research and personal experience into a blended language for an audience of both doctors and patients.

Previous projects Drs.Notes with EndoStats.com and the NCD Alliance campaign, ‘NCD’s and Me’, to identify endometriosis as a global disease necessitating local-to-global policy changes to reduce social and economic injustices (NCDStory).  Dr. Bingham obtained a BS in General Science at Oregon State University, Master of Physical Therapy at University of Maryland Eastern Shore and Doctor of Physical Therapy at Temple University.

Dr. Bingham bridges the gap between evidence-based to practical application and the medical provider’s perception with the patient’s experience.

      • Twitter:  @xtranotrare     
      • Instagram/IGTV: @ExtrapelvicNotRare
      • YouTube Channel: ExtrapelvicNotRare
      • Facebook:  Two closed group education and support groups: 

Extrapelvic Not Rare Endo Support and Education Group (Thoracic, Nerve and Skin) 

Extrapelvic Not Rare Endo Support and Education Urinary and Digestive .  



All Rights Reserved © 2019 Wendy Bingham, DPT.  Extrapelvic Not Rare

(last updated 06/01/2020)